By Eric Vandenbroeck and
co-workers
The
secrets behind making the Diagnostic and Statistical Manual of Mental
Disorders(DSM) Part Two
Already
early on, a group of psychiatrists argued that they were “concerned about
the lowering of diagnostic thresholds for multiple disorder categories, about
the introduction of disorders that may lead to inappropriate medical treatment
of vulnerable populations, and about specific proposals that appear to lack
empirical grounding.”
This was followed by
several high-profile articles by Professor Allen Frances, whose arguments carry
more weight than most, as he was chair of the task force for DSMIV-TR (the
previous update in 1994). In an article entitled DSM 5 Is Guide
Not Bible – Ignore its Ten Worst Changes, he highlighted changes to the manual that he argued
were examples of over-medicalization of mental health.
We will cover DSM and
psychiatric diagnosis aspects that make clinicians and researchers vulnerable
to biased diagnostic decisions. These include Value-laden and vague concepts of
mental disorder, upon which the entire DSM nosology is based. Criterion biases,
biases within diagnostic criteria for specific disorders. Clinician bias,
unfolding in a clinician–client interaction. We will also add further
clarifications and examinations of bias in psychiatric diagnosis to understand
it best and how diagnostic decision-making may be linked to clinical competency
to serve better clients who seek our help.
Initially, the DSM-I
was well suited for the needs of psychiatrists and other clinicians in the
1950s and 1960s, when no professional, economic, or cultural purposes were
served. Psychiatric researchers, who did require well-defined diagnostic
criteria, were few and not highly valued in the profession. Third parties who
might have demanded diagnoses did not have major roles in the economic aspects
of therapeutic encounters: hospital-based psychiatrists were salaried while
patients themselves reimbursed outpatient therapists. By the time the DSM-II
became available in 1968, all these factors were in flux.
Psychiatry was highly
visible in the general culture, but the DSM was not. Particular diagnoses were
rarely used and were not highly valued. Interest in psychiatric diagnosis in
the 1960s was probably at an all-time low. However, the rise of a biomedically
oriented group of psychiatrists and demands from government agencies,
third-party insurers, and the drug industry eventually produced an entirely new
diagnostic system.
The early need for a replacement
Several factors, both
within and outside of psychiatry, created intense demands on the field to
discard the DSM-II and replace it with a completely
different classification. A subspecialty was arising that was more focused
on diagnosis than its psychodynamic counterpart. Before the 1950s, virtually
nothing was known about brain chemistry. The decoding of DNA in 1953 generated
intense new interest in this organ. From that time onward, researchers strove
to identify specific neural mechanisms associated with various mental
disorders. Although the idea that particular brain malfunctions were
responsible for mental pathology revived a dominant strain of thinking in
nineteenth-century psychiatry and neurology, the biological view seemed
genuinely new at the time.
As
psychopharmacologists began to serendipitously discover various psychotropic
drugs, including phenothiazine, imipramine, and monoamine oxidase inhibitors
(MAOIs) in the 1950s, researchers became attracted to the notion that drugs
targeted at specific brain regions could aid in the diagnostic process itself.
Psychiatrist Donald Klein proposed the idea of “psychopharmacological
dissection” to show how the close observation of the varying effects drugs
produced among different patients could help diagnose what specific conditions
they had in the first place.1
The antidepressant
imipramine provided an example: “All research workers who used this drug
initially were unanimous in the conclusion that, unlike many other
psychopharmacological agents, it specifically affects depressive conditions and
has minimal effect on paranoid states or disturbing behavior, particularly in
schizophrenics.”2 The conviction developed that imipramine or an MAOI should be
directed at depression, phenothiazine at schizophrenia, and lithium at manic
depression.
The narrative
emerging from psychopharmacological research thoroughly contrasted with the
analytic focus on uncovering unconscious conflicts from the distant past and
using the therapeutic relationship to resolve them. A distinctly nonanalytic
conception of mental illness also started to penetrate US culture in the
mid-1950s when popular media began to pay attention to biologically based
research and treatments. In 1955, Congress passed the Mental Health Study Act,
which allocated $2 million annually to the National Institute of
Mental Health for psychopharmacological research.3
Congress to cut the NIMH budget
Changing approaches
to mental illness within the federal government was also central in elevating
the need for a new diagnostic system grounded in specificity. Two agencies, the
National Institute of Mental Health and the Food and Drug Administration, pushed
the field to place greater emphasis on diagnoses. The NIMH was the major source
of funding for psychiatric research and education. At the same time,
research-oriented psychiatrists turned away from the psychosocial model; the
NIMH confronted an intense political backlash over its initial focus on social
issues.4
Since the mid-1960s,
this agency’s activist policies and resulting perception that it did not deal
with true diseases led Congress to consistently cut the NIMH budget and,
consequently, funding for psychiatric researchers. A new diagnostic system
grounded in disease-like entities was hoped to be the perfect antidote for the
now-toxic focus on social problems. The NIMH became an important partner of the
American Psychiatric Association in sponsoring a new biomedically oriented DSM
that would serve their mutual interests. The FDA was a second federal agency
that turned psychiatry toward the study of specific diseases. In the early
1960s, a public uproar resulted when the sedative drug thalidomide was found to
produce severe congenital disabilities in the children of mothers who had taken
it for relief of morning sickness. In response to this crisis, in 1962,
Congress passed the Kefauver-Harris drug amendments that directed the FDA to
scrutinize more tightly which drugs could come to market and how they should be
used. The agency began to mandate randomized, placebo-controlled, and
double-blind trials as necessary demonstrations of drug efficacy. This
directive stimulated a new diagnostic system because such procedures required
members of both the treated and the control groups to have the same disease
condition. Congress and the FDA made no distinction between psychiatric and
medical conditions, assuming both could be defined in particular ways.
Yet, the extant DSM criteria were too vague and, in many cases, too infused
with psychodynamic assumptions to serve as the basis for defining the targets
of particular drugs.
The central change in
the DSM-III, which persisted through the III-R and IV, was to split substance
use into two separate categories of dependence and abuse. The DSM-IV criteria
for dependence required the presence of three or more out of seven possible symptoms,
which included the two physiological dependence symptoms of growing tolerance
to the substance or maladaptive problems from withdrawal, and five behavioral
symptoms, including giving up activities, continuing use despite harmful
effects, trying and failing to stop, taking larger amounts than intended, and
spending significant time obtaining and taking the substance.5 Research
indicated that the substance dependence diagnosis had good reliability and
validity in capturing the essential qualities of addictive behavior.6
The DSM-IV, however,
made the diagnosis of substance abuse that involved “impairment in social or
occupational functioning due to substance use” much more problematic. Unlike
the definition of dependence, which tried to define the intrinsically dysfunctional
properties of substance use, abuse referred solely to the adverse social
consequences of use.7
It required just one
symptom of abuse, such as substance-related legal problems or arguments with
spouses about intoxication. Therefore, the DSM-IV contained one diagnosis of
substance dependence, which captured the general nature of addiction, and another
of substance abuse, which violated the DSM principle of avoiding diagnoses that
solely rested on harm in the absence of underlying dysfunction, on social
deviance, or conflicts between an individual and society. A resolution of this
situation seemed to involve correcting or eliminating the invalid abuse
category. The DSM-5, however, moved in a different direction.8
The primary change in
the renamed class of substance-related and addictive disorders was to abandon
the division between substance dependence and substance abuse that had
persisted in every manual since the DSM-III. In its stead, the manual
substituted the single category of substance use disorders, which combined
criteria for the previous two diagnoses into a single entity.9 The head of the
DSM-5 workgroup responsible for the new diagnosis attributed the change to an
“overwhelming abundance of evidence in favor of combining the abuse and
dependence criteria.”10 The DSM-5 criteria, however, seem to be a step backward
from previous formulations of substance use disorders. The new diagnosis
contained 10 possible symptoms, 7 from the earlier dependence diagnosis, 3 from
the earlier abuse diagnosis, and a new symptom of “craving.”11 The workgroup
justified this change because statistical analyses indicated that symptoms of
dependence and abuse were highly correlated.
Because the new DSM-5
criteria are easier to obtain than the DSM-IV diagnosis, it is subject to many
false-positive results. It was reasonable the DSM-5 criteria would increase the
number of symptoms for SUD, but they decreased the number of necessary symptoms.
One review predicted the lowered criteria would produce a 62 percent increase
in SUD diagnoses in the general population compared to the DSM-IV criteria.12
The second problem was
that the new unitary diagnosis incorporated the invalidity problems of the old
substance abuse diagnosis. A person whose substance use led to social or
interpersonal problems and the inability to fulfill major role obligations met
the revised criteria. For example, someone who argues with their spouse about
smoking in bed could have a “tobacco use disorder.”13 Changing patterns of law
enforcement, legislation, and social attitudes might all influence the
prevalence of the new diagnosis: Localities that established checkpoints for
drunken driving could at the same time be increasing levels of a mental
disorder. A law that legalized medical or recreational use of marijuana would
simultaneously decrease rates of mental disorders in that state. Someone could
become mentally ill by moving from one state to another! Instead of having one
valid and one invalid substance use condition, as in the DSM-IV, the DSM-5
criteria had a single diagnosis that could often be invalid.
Third, the new
diagnosis was more heterogeneous than previous manuals. It confounds
dysfunction and social deviance.14 It combines in a single entity someone who
persistently uses large amounts of a substance, is unable to stop using, and
has constant cravings for it with someone who oversleeps and misses an exam.15
It outnumbers the former, resulting in misleadingly high estimates of
SUD.
The DSM-5 changes to
substance use disorders have led the area to become, in the words of one of its
leading practitioners, Griffith Edwards, “a field in disarray.
They blurred the
distinction between mental disorder and social deviance and conflicts between
individuals and society, created the potential for large numbers of false
positives, and led to greater diagnostic heterogeneity. These changes refute
the proclamations that diagnostic changes reflect growing knowledge and show
how diagnoses can regress from their portrayals in earlier manuals.
Just a year before
the DSM-5 was published, APA president-elect Jeffrey Lieberman proclaimed,
“Since DSM-IV was released in 1994, there has been a wealth of new research and
knowledge about the nature and frequency of mental disorders, how the brain
functions and its neurobiology, and the lifelong influences of genes and
environment on a person’s health and behavior. Accordingly, the new
edition—DSM-V—will reflect that new body of knowledge.”16
The DSM-5 closely
resembles its predecessors: the grand ambitions of its creators are not evident
in the diagnostic section, though they are found in its appendices. While no
evidence of brain functions, neurobiology, genes, or the like is found in the DSM-5,
it maintains the descriptive, categorical, and theory-neutral approach of the
preceding manuals. The search for unbiased diagnoses grounded in objective
tests is no more advanced than when the first modern classifications emerged a
century ago. Only external signs and symptoms are still the only resources
available to categorize disorders.
The DSM-5, with its
predecessors, was marked by hostility, controversy, and factionalism. The
leadership of the revision process and the NIMH repudiated and delegitimated
the basic structure of previous DSMs. The APA membership and trustees rejected
researchers’ aspirations to implement a new diagnostic paradigm. The process
revealed the distinct functions of the DSM. Kupfer, Regier, and the task force
were tone-deaf to the importance the DSM had assumed outside of the research
community. Clinicians are often skeptical about the inherent reality of
diagnoses but require them for practical reasons. One psychiatrist who combined
both roles observed, "I am incredibly disciplined in the diagnostic
classifications in my research, but in my private practice, I’ll call a kid a
zebra if it will get him the educational services I think he
needs."17
No single diagnostic system can satisfy both
constituencies
The DSM-5 Task Force
failed to understand that psychiatric diagnoses cannot solely reflect the
findings of research committees, epidemiological studies, and field trials. For
most APA members and other interest groups, the DSM has become an indispensable
practical tool. Clinicians were unconcerned with issues regarding dimensions,
categories, or kappas, and they did not have to
believe in the validity of the DSM diagnoses. Most patients and their families
required a diagnosis to be reimbursed for treatment and receive other forms of
valued resources. The extant DSM was well suited for their needs, while a new
dimensional system would have been a radical transformation with unknown
consequences.
A dimensional system
would have disrupted the DSM's diagnostic system's clinical, research, and
administrative functions. All mental health clinicians have been trained using
the DSM categorical system. Psychology, psychiatry, and social work textbooks are
organized using these diagnostic conceptualizations, and epidemiological data,
service use and medical, economic data, outcome data, and so forth.
The rank and file of
the APA and outside advocacy groups were not willing to accept the
uncertainties that a wholesale change of the DSM would have brought about. The
embeddedness of diagnoses within clinical and institutional practice posed a
formidable barrier to making any fundamental changes in the classification. The
DSM-5 will serve clinicians, administrators, families, and patients just as
well as earlier DSMs.
The DSM-5 saga was
unsettling for psychiatry. The participants initially repudiated the model but
were thwarted in their determination to replace it. Although the manual has few
fundamental changes from the previous versions, it emerged from the revision
process with its credibility shaken. The myth that the DSM rested on a firm
scientific basis was exposed by the same people who had propagated it. The
DSM-5 process might have signaled the end of the manual’s 40 years of
unquestioned dominance in shaping the mental disorder. Despite the overall
similarity of the DSM-5 to previous manuals, its critics were not satisfied.
Allen Frances, who has taught psychiatry for 45 years, said, “You don’t buy it,
you don’t use it, and you don’t teach it.” He urged, “Take away the diagnostic
system, and the APA must be taken away from the American Psychiatric
Association.”18
Since 1980 the DSM
has fundamentally shaped psychiatric thought and practice. It overturned the
psychodynamic notion that mental disorders were intrinsically grounded in each
individual’s existence and the social critique that madness resulted from civilization.
The manual became the touchstone for diagnoses and research. Its labels dictate
what mental health conditions insurance companies reimburse, government
programs pay for, and drug companies market their products to treat. DSM
diagnoses frame how Americans and, increasingly, people worldwide understand
their own interior problems.
If the DSM powerfully
impacts all facets of mental disorder, the manual itself results from the
dynamics and organization of the psychiatric profession and wider cultural,
political, and economic currents. Fluctuations in the politics of psychiatry,
the nature of reimbursement for treatment, and the benefits patients, families,
clinicians, and researchers receive shape the manual’s uses. Over the DSM
period, the manual changed from being the starting point for understandings to
becoming the authoritative source for such understandings and explanations. The
DSM is a fundamentally social document that influences and reflects
psychiatry's changing internal and external dynamics.
The Social Embeddedness of the DSM
The history of the
DSM indicates the manual’s deep entrenchment in the intra-professional and
general sociocultural forces that impact the psychiatric profession. Some of
these influences arise from within the field. Between the mid-twentieth century
and the present, the psychiatric practice relocated from mental institutions to
offices and clinics. At the same time, the profession’s political center of
gravity moved from the psychodynamic clinicians who dominated the initial DSM
period to researchers who held a very different diagnostic agenda. As well,
changing medical norms forced the profession to adopt a more scientific-seeming
classification system. Other forces came from outside the field. Once
psychiatry moved from the hospital to the community, patients and their
families were less likely to view diagnoses as imposed and unwanted labels than
valued treatment sources and other resources. Federal agencies, schools, and
insurance companies all made DSM conditions requirements for service provision.
Drug advertisements became major channels for suggesting which diagnosis
described a consumer’s problems. These factors changed dramatically from the
manual’s emergence in 1952 through its most recent version in 2013.19
Intra-professional forces
When the DSM arose,
the psychiatric practice was undergoing a profound transformation. Before World
War II, nearly all psychiatrists were affiliated with mental hospitals, where
diagnoses mostly served administrative purposes. The war forced psychiatrists
to confront the power of environmental stressors to produce mental disorders in
previously normal individuals, dislodging the organic orientation that had
shaped prior diagnostic manuals.
The DSM-I deftly
responded to the new world of postwar psychiatry. It split mental disorders
into organic and psychogenic categories, reflecting the recent hospital-based
and community-oriented psychiatry division. The profound psychic impacts of
combat also led the initial DSM to add the far broader and more heterogeneous
difficulties found in the general population to the largely psychotic problems
that previous manuals emphasized. Shortly after the first DSM appeared, mental
institutions began a precipitous decline. The roughly half-million patients
residing in the state and county mental hospitals in the early 1950s fell to
just 63,000 at the turn of the century and to below 40,000 at present.20 The
status of the major diagnostic categories changed accordingly. Compared to the
initial duality of organic and psychogenic conditions, the most recent DSM
devotes just 2 of its 22 chapters to the psychoses.
Outpatient
practitioners had little need for diagnoses in the 1950s and 1960s, as most
clients paid for their own treatment. Dominant analytic theories downplayed or
dismissed the diagnostic process. Thus, the brief and nonspecific descriptions
of the psychogenic conditions found in the first two DSMs sufficed.
Political conflicts
within the profession profoundly influenced the course of the DSM. The first
DSM arose when almost all psychiatrists were clinicians or administrators. By
the early 1970s, psychiatric researchers had gained considerable power and prestige,
and diagnoses were essential for their goals. The extant DSM did not provide
them with the precise descriptions and decision rules that ensured they dealt
with homogeneous groups. Robert Spitzer, the leader of the researchers who
promulgated the DSM-III revolution, understood that the manual also had to meet
clinical needs.
Practitioners did not
require uniform diagnostic criteria, and many held cynical attitudes about DSM
diagnoses. By the 1970s, however, they had no choice but to put diagnostic
codes on reimbursement forms. Clinicians also needed an inclusive system with categories
that encompassed all their clients. Spitzer realized that the manual had to
span the range of conditions found in psychiatric practice.
Now the anxiety and
depressive classes, the former neuroses best illustrate how intra-professional
concerns shape DSM diagnoses. In the initial two manuals, anxiety was the core
dynamic behind all the psychoneuroses, including depressive neurosis. It was by
far the most commonly found condition during the 1950s and 1960s. Unlike
anxiety, depression was mostly associated with severe psychotic conditions and
was much less likely to be diagnosed. In the following decade, while clinicians
remained dedicated to the anxiety-based neuroses, the biological psychiatrists
gaining power in the profession targeted depression.
The researcher-driven
DSM-III inverted the relative standing of anxiety and depression diagnoses.
Spitzer and his task force were determined to demolish the analytic concept of
neuroses, which entailed removing anxiety from the core position it held in the
previous two manuals. The DSM-III split anxiety into nine discrete conditions,
which simultaneously decreased its sweeping scope. The carving up of the
anxiety disorders contrasted with the unification of the formerly distinct
psychotic and neurotic depressive conditions into a single major depressive
disorder diagnosis. The DSM-III also allocated the most common symptoms of the
neurasthenic tradition, for example, sadness, fatigue, sleep, and appetite
difficulties, to MDD rather than to any anxiety diagnosis. Further, the
two-week duration required for depression was far shorter than the typical
six-month duration for anxiety conditions.
Intra-professional dynamics
drove the divergent diagnostic criteria for anxiety and depression that arose
in the DSM-III. Researchers were both attracted to depressive conditions and
determined to sideline the anxiety-based neurotic diagnoses. Because its
symptoms were so common and criteria easy to meet, MDD became the diagnosis of
choice in outpatient psychiatric and general medical practices rather than any
anxiety disorder. After 1980 the MDD diagnosis flourished. An unforeseen
outcome of the DSM’s different treatment of depression and anxiety came when
the SSRI drugs entered the market in the late 1980s. These drugs were not
selective for depression, anxiety, or any other condition but act very
generally to elevate serotonin levels in the brain. The manual’s distinct formulations
of anxiety and depression led drug marketers to call them “antidepressants”
rather than “anxiolytics.” The enormous success of the “antidepressant” SSRIs
echoed that of the “antianxiety” drugs of the 1950s and 1960s and reinforced
the prominence of depression in the post-DSM-III period.
The intense
intra-professional conflicts between clinical and research psychiatrists
subsided during the DSM-III-R and IV eras. Researchers embraced a diagnostic
system that they expected would lead to breakthroughs in mental illnesses'
understanding and treatments. Clinicians shed their former suspicions of a
classification that brought them monetary rewards, elevated their status in the
medical profession, and enhanced their cultural prestige.
The conflicts that
rocked psychiatry during the making of the DSM-III reemerged in the
twenty-first century when researchers again attempted to revolutionize
psychiatry’s diagnostic system. By that time, the research community viewed the
DSM categories as obstacles to comprehending the nature of mental disorders.
The new incarnation of the struggle between clinicians and researchers
resurrected a question that has vexed the profession: Are mental disorders best
seen as categorical or dimensional? Diagnostic manuals before World War II
generally relied on the categorical approach. Spitzer and his Washington
University collaborators then returned to the earlier categorical model in
developing the DSM-III. After the findings from neuroscientific research indicated
a sharp disconnect from the DSM categories, the DSM-5 Task Force decided that
the way forward lay in reverting to the conception of mental disorders as
continuous.
The DSM-5 process
highlighted personality disorders as a central concern to dynamic clinicians
during the DSM-I and II period. They were the most frequently diagnosed
conditions and were scorned because they did not fit the essential qualities of
disease entities. The clash between clinicians and researchers over the
inclusion of personality disorders in the DSM-III was one of the most intense
conflicts during the construction of that manual. Spitzer ingeniously mollified
both researchers and clinicians by using the new multiaxial system to separate
this class from the other DSM conditions.
In an interesting
twist from prior DSM history, researchers, not clinicians, made the personality
disorders central to their efforts to overhaul the DSM system. Allying with
personality psychologists, the DSM-5 Task Force used this class as the model
for its attempts to transform the manual. The Personality Disorders work
group’s proposal imported a common type of continuous measurement from
psychologists, who studied populations where they did not need to make
diagnoses or even consider actual behavior or real-life situations. Individuals
receive a quantitative score on several personality dimensions that related
their traits to the means of others in the population. Adherents to this school
of thought would affix the prefix of “factor,” not “psycho,” before the term
“analysis.”21
If the establishment
of the DSM-III signified the new power of psychiatric researchers, their failed
attempt to transform the DSM-IV showed how deeply embedded in clinical practice
the manual’s diagnoses had become. This time, the intense conflicts over dimensionalizing the personality disorders were confined to
the psychiatric profession. No drugs target this category, and no outside
groups promote them. Earlier feminist opposition to diagnoses that targeted
stereotypical female character traits had subsided. Even now, researchers
continue to make strenuous efforts to dimensionalize
personality disorders. However, it is an open question whether they can impose
a system that radically departs from conventional clinical views in future
DSMs.
When researchers
involved in the DSM-5 revision attempted to make fundamental changes in the
manual, they found that the DSM categories had become so important for
clinicians that they could not be dislodged. One reason was that practitioners
worried that a dimensional system would threaten insurance reimbursement. The
researchers who proposed a new dimensional system also underestimated how
medical thinking and culture emphasize dichotomies. While medical diagnoses are
often uncertain and ambiguous, most diseases are distinct from, not continuous
with, health. Such dimensional conditions as blood pressure or cholesterol
levels are divided at cut points, indicating likely pathology. Regardless of
whether any illness is dichotomous or continuous in nature, clinicians must
make decisions to treat or not to treat it. Therefore, the constraints of
medical practice lead physicians, including psychiatrists, to think in black
and white. Perhaps most important, diagnostic categories make mental disorders
seem more real to the public, physicians in other medical specialties,
insurance companies, and federal regulators.22
Any system that must
legitimize its diagnoses as medical diseases will inevitably rely on categories
rather than dimensions. In 1980 researchers successfully overcame clinical
opposition to the new DSM system; by 2013, clinicians beat back the efforts of
researchers to change the classification.
External forces
Anxiety, depression,
and personality disorders illustrate how intra-professional disputes shaped
some of the core DSM diagnoses. External interests played more important roles
in developing a number of the manual’s other conditions.
Before the early
1970s, no groups outside of the psychiatric profession showed much interest in
the manual. At that time, the fierce public debate over homosexuality marked
the first entry of outside forces into the DSM process. The success of LGBT
organizations in removing this condition from the DSM-II turned out to be an
exception. By the time the DSM-III appeared, unwanted diagnoses were already
uncommon. Most subsequent attempts of patients, their families, and other
external groups to change the manual involved broadening its existing
conditions or incorporating new ones.
The determined
efforts of Vietnam veterans to ensure that the DSM-III contained a PTSD
diagnosis provided the model for future activists. Although its predecessor,
gross stress reaction, stimulated the development of the DSM-I, the DSM-II
lacked a comparable stress-related diagnosis.
This gap did not
concern the DSM-III Task Force, who believed that other categories such as
anxiety and depression could capture the psychic impacts of environmental
stressors. However, the lack of an appropriate stress-related diagnosis was of
intense concern to Vietnam War veterans, who launched a highly publicized and
successful campaign to recognize persistent or long-delayed stress reactions as
mental disorders. The veterans’ advocacy efforts provided a model for lobbying
that feminist groups employed to expand the PTSD criteria in the DSM-III-R and
DSM-IV. The monetary benefits and access to care that can accompany a PTSD
diagnosis have made this one of the DSM’s most popular diagnoses. “It is rare
to find a psychiatric diagnosis that anyone likes to have,” psychiatrist Nancy
Andreasen observes, “but PTSD seems to be one of them.”23
As third parties
increasingly required DSM diagnoses to pay for treatment and other services,
consumers and their families came to view them as valuable commodities. After
federal legislation made the manual’s conditions necessary tickets to
educational and mental health benefits and monetary compensation through social
security disability payments, the worth of the DSM labels was considerably
enhanced. For example, by 2007, 1 in every 76 American adults received federal
income assistance because of mental disability.24 Local and state governments
also required DSM diagnoses before children could receive mental health
treatments and special education services. Organized parents helped drive the
huge expansion of mental disorders among children and adolescents from 1980 to
the present. Indeed, when changes in the DSM-5 criteria set for autism and
Asperger syndrome threatened to restrict diagnoses, strong parental pushback
forced the manual to allow all previously diagnosed children to maintain their
labels even when they no longer met the new criteria. It is now far easier to
broaden diagnostic criteria that lead to benefits than it is to reverse this
process.25
As the use of the DSM
turned from social control purposes to a necessary precondition for desired
therapies, drugs, and other forms of assistance, the anti-diagnostic narrative
that was extremely influential during the 1960s and early 1970s became anachronistic.
The DSM diagnoses were so highly valued that by the time the DSM-5 revision
began, even the LGBT organizations that led earlier conflicts to remove the
homosexuality diagnosis from the DSM-II fought to maintain the gender dysphoria
diagnosis because it was a precondition to pay for gender transition surgery.
The DSM-5 kept this condition at activists' insistence and gave it its own
chapter, 1 of just 22 in the manual.
The pharmaceutical
industry is another potent interest that has promoted the DSM diagnoses. Since
1972, the FDA had forced drug companies to demonstrate that their products
effectively treated specific mental disorders. Henceforth, all research on drug
effectiveness would rely on DSM categories. In turn, psychiatry departments and
many of their members became dependent on funding from pharmaceutical
interests. Nearly 70 percent of DSM-5 Task Force members had financial ties to
the industry.26 Since the 1990s, the powerful pharmaceutical industry has been
inseparable from the rise of the DSM diagnoses into public consciousness. Drug
companies were especially successful in capitalizing on parental desires to
regulate their children’s distressing and disruptive behavior. In addition to
massive advertising campaigns, they generously funded advocacy groups concerned
with childhood and adolescent conditions. Sales of stimulant drugs for ADHD
quintupled from 2002 to 2013, by which time they amounted to almost $9 billion.
Similarly, fueled by researchers who received generous funding from the drug
industry, childhood bipolar disorder underwent a stunning fortyfold increase in
rates from 1994 to 2003. The number of persons under 20 years old who received
prescriptions for antipsychotic medications jumped from about 200,000 in
1993–95 to about 1.2 million in 2002.27
Many psychiatric
labels were imposed on involuntarily hospitalized patients or other socially
deviant groups when the DSM-I appeared. By now, few are forced on resistant
patients, but many bring about benefits for consumers and industries. No
powerful groups push for abolishing DSM conditions. Both internal and external
interests should ensure that the manual’s large array of diagnoses persist in
the years ahead.
Footnotes upon request by writing to
ericvandenbroeck1969@gmail.com
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